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About

Chris Tschupp was born in New York State and raised in Toms River, New Jersey. His grandmother taught him how to skate at 4 years old and by the time he was 5, he knew he needed to play hockey. He made his first travel team as a Mite and there was no looking back as he began to chase his passion. Chris played hard for the next 20 years: Bricktown, NJ, the Philadelphia Little Flyers, Toms River High School East, Trinity-Pawling Prep School, University of Notre Dame, and minor league pro hockey. In June 1990, the two decades of hard work paid off and he was selected as the 125th Overall Pick in the NHL Draft by the Calgary Flames, the Stanley Cup Champions!

FAST-FORWARD, 29 YEARS AFTER THE NHL DRAFT

Chris noticed that his fingers had started curling, his hands were getting weaker, and he could no longer hold a hockey stick. He saw a chiropractor, a spine surgeon, had X-rays taken of his neck and spine, got a cervical MRI, a brain MRI with contrast, an EMG, and a nerve conduction study. Chris thought everything was pointing towards “stenosis” in his neck… That the stenosis, apparently, was putting pressure on his nerves that control his hands. But then his speech started to slow, and he was referred to a neurologist (a motor neuron specialist) and after testing, he came back with a shocking diagnosis—that he has ALS. Chris was told he has 2-5 years to live.

Over the course of the following weeks, Chris saw three more neurologists. They conducted another EMG/NCS test, a lumbar puncture/spinal tap, blood tests that revealed elevated antibodies, and a heart calcium test with a cardiologist. The elevated antibodies were treated with neuropathy – a specialized IV drip – but it was infused at too high a rate. Chris ended up in the Emergency Room with Aseptic Meningitis for three days. The specialists he saw gave him no hope, no effective solutions, and no suggestions for alternative treatments. So after seeing many more doctors and specialists, he continues to face the biggest challenge of his life: ALS and how to Halt it.

After attending a HEAL ALS conference in Salt Lake City, UT, in 2019, Chris realized and accepted the reality of his situation and turned his attention towards fighting harder than he ever has to sustain his life. Breaking the news to his girl, Sofia Grace, his parents, sister, relatives, and friends was heart-breaking. His tears flowed like never before. He didn’t know what to do, who to see, what treatments to seek – he was in complete shock. Doctors told him that there was nothing he could do except enjoy his life until it ends. But these doctors do not know Chris Tschupp…

11

HE WILL NEVER GIVE UP! EVER!

Chris continues to persevere. As a screenwriter today, though he can’t type anymore, much less hold a pen or pencil, Chris has written 4 TV shows, 2 full-length feature films and has 4 more in the pipeline, While writing is difficult, Chris will never quit telling great stories that inspire people and have an impact on the world.

GALLERY